Sunday, April 15, 2007

Alot happening...

Since my last pity post so much has transpired. Hannah is in school. She was admitted into the PPCD(Public Pre-school for Children with Disabilities) program at our local public school. There she can recieve services and we don't pay out of pocket for them. Our tax dollars pay for them. Big relief.

I finally just reached beyond myself and so many people contributed to the process. Either by helping me find the right avenues or encouraging me to keep going. We really need each other. The end result has been a good one. We have an educational team set up and they have been great. The teacher and I email back and forth. The nurse was amazing. Everyone was.

This really takes some pressure off me. I have felt the lone burden of educating Hannah and getting the help she needs to succeed. That's a really tall order for one person. It has pushed me out of my comfort zone and caused me to put myself out there more than I would have otherwise. I'm definately experiencing continued growth as a person. I've stretched myself more than I ever thought possible and know that I will be stretched even more as the process continues. I'm willing.

Hannah's first week came to an end and she did amazing. I recieved an email from her teacher thanking us for sharing her with them and telling me that Hannah adjusted better than any of her kids ever have the first week. She said we should be proud of her and we are. I think her daddy is the most proud of his princess. She really did do well. I'm so incredibly thankful.

God's blessing to all of you! You're really appreciated by this family. I hope you know that.

Wednesday, March 21, 2007

A Bad Day...

I'm typing here. No one will see it anyway. I think people are tired of all my problems. I know I am. Nothing too serious. Just life. But still...

I know life isn't fair. I just wish something could be easy for me. Just once. I can feel myself spiraling and I'm doing all the things to keep it from happening but it just isn't working.

I read an article today about "grieving". It was about how parents grieve their children's disabilites, etc. I think it's true. I know I grieve and wonder if I ever won't. And then I feel just awful because I should be more thankful. I mean, Hannah's alive. The alternative is so much worse. I can't imagine life without her.

Really, no parent should have to go through this and I know parents who have it much worse than we have. Children shouldn't have to go through this. What can possibly be gained from the inability to function on a normal level with your peers. It's heartbreaking.

I find myself questioning God one moment and crying out to him the next. My mind is so confused. Why? I mean, I can understand ONE thing, but one thing after another and another. It's so unfair. There I go using that word again. Sigh!

I just need some answers. Just some guidance. I'm tired of fumbling my way through this developmental maze. There just seems to be no answers. Why is it such a fight? I just dont' get it. Developmental delays are prevalent. It's unreal.

I'm just so weary. But it doesn't matter because I HAVE to keep going. I'm a parent of a child with "special needs". No rest for the weary.

Saturday, January 27, 2007

Order My Steps...

It's been way too long since I posted or even attempted to write. I struggle so much with writing and it's really something I enjoy doing. I more than enjoy it. I love it.

I'm afraid the thing I love to do is not something I'm good at doing. You know, most of us have seen the "American Idol" auditions and those people that think they can sing and are oblivious to the fact that they can't carry a tune. It's so heartbreaking to watch. I would be just as devastated to find out that my writing sucks. That I have not an ounce of talent because it is something I truly love doing. So, I ignore it a lot and just don't do it. In this ever turning brain of mine I have this idea that if I don't do it long enough I will lose the desire to do it. Wrong. The idea is just that, an idea and the desire to write is never quenched. So, I guess I write good or bad and let my ever turning brain work things out eventually. :<)

I've changed the way I pray lately. Have you ever done that? Just change something in the way you approach God? Anyway, it's led to some discoveries about myself.

God really cares about me. He cares about my everyday life. I'll beat my head against the wall trying to figure things out or make things happen. Then I come to myself, buckle my knees and just ask for some help. "Order my steps Lord", I pray. Decision making is not something I do well. I do it all the time but it is mental torment for me to decide something and be o.k. with it. I have to know that what I am deciding is the absolute best thing. You can only imagine how many times my decisions are the "best" option. I watched though as the very things I have beat my head about simply work out once I reach outside myself. God hears me.

One of those decisions I've struggled with is my 5 yrs old daughters development. Her vocabulary is at the level of a 3 yr old and she has sensory/motor delays. It was easy for me to call on God when she was in the NICU unit and only had a 50% chance of survival. Those were things that were out of my hands. It's been easy to call on God when she was seizing or having surgery. It's not been so easy though when it has come to things I thought I should be able to control. Development. Isn't that a mom's job? Nothing I did worked. Every hoop I jumped through led me to frustration and waiting. Precious time is wasting, I would think. I was wasting precious time. I needed to make some tough decisions and I needed someone to help me make those decisions. So, again, I came to myself. "Order my steps Lord", I prayed. "Please help me. I'm afraid and I don't know what the best thing to do is." In the next few days I watched as people were put in my path that had information I could use to get us the help we needed. Phone calls came in that I had been waiting months on. Appointments set and therapy scheduled. I stood in awe. It was so easy. God heard me.

I opened my Bible the other day and came across this verse. Psalms 119:33 Order my steps in thy word: and let not any iniquity have dominion over me. So, my prayer isn't anything new. The psalmist prayed it. I've decided that having my steps "ordered in His Word" is a wonderful thing. It brings peace to my troubled mind and rest to my soul. I pray this is a lesson learned. I'm such a stubborn soul though. Thankfully God is so patient and he will let me review my lesson as many times as it takes me to get it.

Living and Learning,
Marcey

Friday, September 22, 2006

Ponderings...

It's been a while since I posted here. I got a boost last night and well, here I am.

Speaking of last night, we had an artist way reunion. The ladies from my second group met. It was alot of fun and I was so excited to see everyone. I love hearing about everyone's lives, family, and interests. I was a little sad when I left because I realized that was probably the last time I'd see any of them. The only bummer I found to attending groups is that when they are over people lose touch.

Life has been so hectic lately. I took on schooling Hannah. I just couldn't be satisfied with our options for her and well, I'm hoping I can cater to her learning style and needs more easily. We did join a MOPS group that meets every Tuesday morning. She enjoys playing with the kids and I enjoy the fellowship of other moms. Oh, and we joined a homeschool group that we can sign up for varying activities throughout the month. On top of that we will soon have speech therapy and are setting up occupational and physical therapy too. She's really improved in the few weeks I've been working with her.

I never posted the previous two paragraphs so I'm going to continue with my post today following. 10/21/06

I find myself really overwhelmed lately. There is so much that needs and requires my attention. My mind is constantly at wonder as to how other families manage. I know other people have it as hard or harder than we do and they do it well. My expectations have been altered. I don't expect perfection. Well, is all I want or desire. What does "well" mean? O.K., so I looked it up and it could easily be just a baby step from perfection. LOL! Interesting. I guess my expectations haven't been altered as much as I thought they had. So, expectations. What are my expectations? I think I just want right and good. Is that too much? Something for me to continue to ponder. At any rate, I am overwhelmed and I really need to do something about it.

Besides being overwhelmed I am feeling tremendously guilty. For all of Hannah's 5 yr old life I have worked like a dog to give her everything she needed. Somehow it hasn't been enough. I'm frustrated and maybe a little angry that I just cant' seem to get things right. I focused on her health. Researched epilepsy, prematurity, and any number of other health concerns we have had with her. The first 3 1/2 years were totally focused on her health. Development took a backseat and now because I wasn't able to focus on both or balance both health and development we are in for some really intensive therapies. Just when I thought we might get a break. How do other people do it? Why did I miss this? How did I miss it? Did I choose to ignore it because I knew it was something I just couldn't do "right"? So many questions. This is her life. I need to get it right.

I can't live in guilt though. Guilt and blame keep a person stuck. They are unable to move when they are stooped in it. I refuse to not be moving. I cant' stop moving.

The only thing I know to do when things get this way is to stop, regroup, and have a meeting with my best friend. "I sought the Lord, and he heard me, and delivered me from all my fears......This poor man cried, and the Lord heard him, and saved him out of all his troubles." psalms 34: 4 & 6.

Living and Learning,
Marcey

Sunday, July 09, 2006

Cure for Fear?

Fear. What a tiny word for such a HUGE emotion. Fear is capable of so many things. It can drive a person or it can freeze them. Fear can aid a person in their quest for success or it can be the very thing that leads to their failure. A single four letter word. Wow!

Recently I experienced the stifling kind of fear. The fear that stops you dead in your tracks. I am a part of a group called "The Artist Way". We're just a group of ladies from all walks of life that have gotten together and are discovering things about ourselves or resurrecting life enhancing things that have been long buried. Our manual is a book by Julia Cameron called "The Artist's Way; A Spiritual Path to Higher Creativity". Awesome writing and instruction. I give it a huge thumbs up. Anyway, during one of our weekly meetings I sort of blurted out my desire to write. I received lots of affirmation from the group. No negativity sent my way at all. What happens though? You guessed it. I all of a sudden could not write. I would pick up my pen and nothing. I would sit down to type and nothing. It was so heart breaking for me because writing has always been my "outlet". You know those little voices we all have, well, they were talking non stop. "Look what you did. You said you wanted to write and you can't. You told them and now people are going to expect you to write." It was a lot more brutal than that but I am toning it down in case someone does actually read this. LOL! It was so bad that I swore off writing. I quit writing morning pages. I quit journaling and I didn't' work on any of my stuff. I found myself soon depressed. Just the other day I picked up my "Artist Way" book and thumbed through it. Julia speaks of synchronicity in her book and well, I think I may have experienced a bit of it that day. My thumbs landed on Week 9 "Recovering a Sense of Compassion". What's the first section labeled? "Fear". Julia says this, "Fear is what blocks an artist. The fear of not being good enough. The fear of not finishing. The fear of failure and of success. The fear of beginning at all. There is only one cure for fear. The cure is love...Stop yelling at yourself. Be nice..." She says a lot more than that about it but you'll have to get the book and check it out. Anyway, so, I'm afraid. That's why I'm not writing. I'm not stupid, incompetent, or dreaming. I'm just scared.

So, the cure is Love. Seems I've heard that message before. "Perfect Love Casts out Fear" I've wrote here before about my "theory" concerning "perfect love". What if to make love perfect you have to allow yourself to love yourself. You know, do what is good for you. Take care of yourself. Be nice to YOU. How many of us are nice to ourselves? I don't know about you but I often take a mental verbal beating on an almost daily basis. If I were to say to another person the things I say to myself I wouldn't have many friends and I'd probably lose my family. What gives us the right to berate ourselves like that? The Bible does mention loving your neighbor as yourself doesn't it? Well, I feel sorry for my neighbor if he's getting the kind of love I throw my way.

I want different. I'm not sure what the answer is. I don't know how you change your thinking where yourself is concerned. How do you take a lifetime of relating and reacting to yourself and change that? I'm going to try to find out though. And I'll probably write more about it on another day. Wish me luck.

God Bless!

Living and Learning,
Marcey

Wednesday, May 24, 2006

Time Flies

Wow! Last night I attended Kyle's last middle school band concert. In August he'll be a 9th grader. It's so hard to believe. He's such a handsome young man and smart too. The high school girls were hitting on him back stage. Oh man! Let me get my hands on them. LOL! Not really. I am confident that Kyle has great morals and will be a joy to his teachers and peers in the next 4 years. It seems like only yesterday he was talking to the elderly neighbors over the fence. (sigh) How Time flies????

Zachary is leaving his elementary life behind and will be in junior high come August. He also is growing up to be quite the young man. He's excited about athletics. This will be his first year to participate. I have a feeling the next couple of years will be quite interesting. He's went through 3 sizes of clothing this year alone. Seems like just yesterday he was pouring sugar on my kitchen floor and running his match box cars through it proclaiming, "it's 'nowing momma, it's 'nowing".

Then there's Hannah. She turns 5 next week. She has grown like a weed this past year. The little fragile girl has beaten the odds and become strong and well. She's beautiful and a mess. LOL! I'm going to try my hand at schooling her this year and I'm really looking forward to it. There's nothing more exciting then seeing little minds at work. Especially hers. I can't believe 5 years have past since she was in NICU with only a 50% chance of survival. It's exciting when I look back and see the fight she put up for life. She's an amazing little girl and I can't wait to see the woman she becomes.

Last night as I was driving home from the concert I saw the most beautiful sunset. I've never really thought about sunsets. So many writers focus on the sunrise. But with every sunrise there is a sunset. As I thought of all the sunsets in my children's life I was very thankful that I was there to witness the sunset of each experience as well as the rise. That is a miraculous gift. One to savor and treasure. If we only had sunrises we'd never know the joy of accomplishments. Think about it.

Living and Learning,
Marcey

Monday, May 08, 2006

Love and Fear

Wow, It's been that long since I posted on my blog? Shame on me. I haven't shared my blog with anyone just yet. Maybe soon. We'll see.

Live and Learn is still the undercurrent running in my life right now. It's both scary and exciting. I've got more "ideas" than I have time. If I can only figure out how to implement some of those "ideas" without making a total mess of things I would be one happy person.

Recently I came to realize how much fear is a part of my life. As I'm sure it's a big part of most peoples lives. In the Christian ranks we talk a lot about love and how it cast out fear. So, if we love ourselves, does that love cast out fear? I believe it does. If that love comes from Christ and I believe he wants us to care and love ourselves then that love will also cast out fear. I wonder if the lack of love for ourselves is the key reason most of us still have fear. We have love all around us. Our family, friends, pastors, teachers, spouses, and God himself love us and we still have fear. What if we add the love for ourselves and that makes it the "perfect" love? I am no theologian. These are just my ponderings. Anyway, I'm going to work on the "loving self" thing and see if it helps with my fears. I'll let y'all know how it goes.

Well, I should get busy around here. My quote for the day is from Eleanor Roosevelt, "It takes as much energy to wish as it does to plan".

Living and Learning,
Marcey

Tuesday, September 27, 2005

It's been a while...

I haven't posted in quite some time. So much has been happening. The kids are growing and changing so quickly. Kyle had his first accident. He wrecked on his skateboard with no pads or helmet and chipped and cracked his elbow. He saw an orthopedic doctor today. Zachary has tried to go without his Concerta and already he's had detention everyday. He will start back on it this week. Hannah is doing about the same. She's a mess. She's got an upcoming surg. soon. David is working, helping at the church and going to school. As for me, well, I'm working at Mikasa part time still. I enjoy it for the most part.

The hurricanes lately have really motivated my thoughts. I think about all the people who have lost so much. How thankful I am for the things that I have. I also know from experience that when you're down the most is when you seem to see God's love unlike any other time. What a shame it is that it takes such tragedy for us to really see how much He cares for us. Why does it take such times as these for people to do what we've all been called of Christ to do? Love one another.

In the last week I have been privileged to meet and talk with many evacuees. Both of Katrina and Rita. It was so encouraging to hear the stories of what strangers have done for one another in these terribly trying times. Almost all have relayed their stories with teary eyes and a thankful heart. It's refreshing to see people helping each other. I can just imagine God smiling down and saying, "there you go. That's it children. that's the way." Oh what a proud pappa he must be.

I think that despite all the negative things being tossed our way about our leaders, we as a country still have a heart like no other. God still blesses the USA.

Living and Learning,
Marcey

Friday, July 22, 2005

Introduction

Wow, I did it. I started a blog. I have no clue what my intentions are really and what this will even turn into. Mostly just posting my thoughts and feelings.

My name is Marcey and I am 34 years old. I titled this blog "Live and Learn". Kind of clinche', I know, but so much about my life is learning to live and living to learn. I am a "knowledge" freak. I love school. Do not have a college education but if I was able, I'm sure I'd be one of those "professional" students. To this point all I've managed is a certification in medical office administration and transcription from a business school but it sure was fun getting it.

I also enjoy collecting items. One of my biggest is bags. Bags of any kind. Purses, book bags, cosmetic bags. A couple of other things I collect are teapots, tea cups, and porcelain dolls. I recently started in on Barbie dolls too.

If I were asked to describe myself, I think it would be accurate to say that I am shy, verbally challenged, but considerate and caring. I am friendly but reserved. I'm not a confident person but I admire confident people. I like people but am uncomfortable around them. I have room to grow that's for sure.

My family is very important to me. My boys are amazing young men and I thank God he gave them to me. My little angel girl is a miracle (that'll have to be another post) and she brings such light to my life. I have been very blessed.

My greatest struggle right now, well, there are many, but one that I am really worried about right now is that I am not healthy. I weigh too much. I don't know how it got this bad. I have got to lose some weight. A lot of weight... And finding the motivation to do it is really hard. There are just so many things that need my time and attention. (((sigh)))

My life is ever changing lately or maybe it's not really my life that has changed so much but the way I feel about my life. Here's where I say..."Good bye for now".

Living and Learning,
Marcey